March 15th

Today has been a quiet day. Khloe has slept alot more today than in the past few days; drs think because of all the ups and downs with the medicines. She has not been tummy sick for more than 24 hours now, which is good news, and as of 4:00pm this afternoon has had her medication lowered for another attempt. The drs also started her on one more new medicine which can be taken at home. Her chest pain seems to be under control, but her knees started swelling and showing some bruising yesterday, more so today, that is thought to be caused by one of these new meds so that is being watched closely.

Larry and Grandma were up for a visit, as well as Bishop and Sister Temple, and yesterday evening Mandi, Khloe's Make-A-Wish liason and friend was able to stop by. Khloe and I both enjoy being able to have visits now, though they are still on a minute by minute approval granting by the staff here depending on how she is doing at the time; we know that some of you have been by but have not been able to come into the PICU and we are sorry that a visit was not possible, but have loved getting your messages. We both look forward to getting home and having time to visit with more of you.

As for when we will be home, that seems to be farther into this next week now. Khloe and I decided today that when we get home we want to have a celebration...she thinks ice cream cake will be good and I like the idea of a Costco cake with buttecream frosting - can you tell that while the food here is really very good we are both craving something more??!! And Khloe would like to eat at a table instead of in bed and I look forward to having people to talk with over a meal instead of eating solo all the time. We were both laughing about this today because Khloe has always thought the epitome of luxury was eating in bed while watching TV (something not allowed at home) and there have been times when I thought a solitary meal or two might be nice...we have both changed our minds!

A special thank you today to Billie Kaye for lending me the book "Everyday Greatness".
I have especially enjoyed reading the stories and insights compiled within it's pages and though it is a book that can be opened up to any section at any time, I find I am reading it from cover to cover. So I will end tonight with a quote by Thomas Carlyle under the category of 'Taking Charge' which I felt spoke directly to me at this moment in my life..."The times are bad. Very well, you are there to make them better".